12 June 2023

Inclusion is strength

Albinism affects 1 in 5,000 to 15,000 people in Africa. Albinism is a rare condition that commonly results in the lack of melanin pigment in the hair, skin and eyes, causing vulnerability to sun exposure. Because of superstition that the body parts of someone with albinism can bring wealth and other benefits, many persons with albinism have been…, Paul Butita, Kenya, Paul Butita is from Nairobi, Kenya. Growing up as a child with albinism was not easy as he was raised in the slums of Mathare where there were many misconceptions about albinism. “My mother had to be extra careful and overprotective.” He explains that young persons with albinism face barriers to higher education and employment, inadequate access…, Hlobisile Masinga, South Africa, Hlobisile Masinga is from South Africa and identifies as queer. “I face both homophobia and discrimination because I have albinism. I have also experienced discrimination from the gay community. I have heard comments like ‘But you have albinism, how are you gay?’” Hlobisile decided to establish The Pink Roses Foundation with a vision to create a…, Naomi Muhamba, Malawi, Naomi Muhamba is from Malawi. Both Naomi and her older brother were born with albinism. Their mother told them that school is the only legacy she would give them, which made Naomi and her brother study hard. Today Naomi is a social worker and an advocate for the rights of persons with disabilities. “To my fellow youths, the sky is the limit, let…